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Thoughts on End of Life Care

Back in 2014, I wrote a post titled, Facing Your Parents Mortality. At the time, I didn’t know my dad had just 4 more years to live and mom had 8 years left. Dad died at age 78. Mom died at age 82. I think they were in their 50s when they were diagnosed with congestive heart failure. This week, I discovered I’m having some health issues myself.

Judging by their life, I’ve still got 25 years left. But I’ve had more doctor appointments in the past 10 days than I’ve ever had in my life. I don’t like it. Most tests are coming back normal, which is good, but also bad. If it was something simple, they could give me some antibiotics or something and I’d be done. Instead, they keep running tests to try to figure out what’s wrong.

So, it’s given me a reason to start exercising. I’m trying intermittent fasting to lose weight, which so far no doctor has told me I need to do, but of course I’m not the weight I used to weigh in high school when I ran cross country and played basketball all the time.

I was listening to a Freakonomics episode this week that discussed Ozempic as an almost miracle drug. It lowers weight, appetite, diabetes, improves heart function. Side effects include diarhea, constipation, and other intestinal distress. Other than that, it almost sounds too good to be true. Then I learned that there is another drug called Zepbound with even greater weight loss.

Stephen Dubner interviewed Ezekiel Emmanuel, an oncologist and medical ethecist about Ozempic, but about other health issues as well. Emmanuel had some interesting things to say. Back in 2014, Zeke wrote an article titled, Why I Hope to Die at 75. In 2024, Zeke is now 67 years old. One of the controversial things he said was he did not want to take life-prolonging treatment after age 75. At the time, this included flu shots, antibiotics, and vaccines. With COVID coming out in 2019, he has softened his stance on vaccines, and he said he would take a COVID vaccine now. On the other hand, he said that if he broke his hip, he would get it repaired.

Why age 75? Zeke said that 30% of people have a cognitive decline at age 80 and he wasn’t interested in finding out if he’s in that 30%. The rate of Alzheimers is going down, but the raw numbers of people are going up due to baby boomers aging. He said far too many people say that they want good quality of life, but then when they get to that age, opt for quantity of life instead of quality of life by taking so many medications to prolong life.

The Nixon administration started a War on Cancer. Many argue it hasn’t succeeded. However, there is an argument that cardiovascular care has improved so much since Nixon that people are living longer with cardiac problems and dying of cancer instead.

It should be noted that Ezekiel Emmanuel is the brother of former Obama Chief of Staff Rahm Emmanuel. Zeke was involved in both crafting Obamacare and advising Pres Trump in his first term about health care. So it seems he has a very solid grasp of the issues of end of life care.

So it brings up several questions. Do you agree with Ezekiel Emmanuel with regards to end of life? Would you like to die at age 75? Are these questions that Mormon leaders have weighed in on? Is it a personal decision? Have you put a living will together? To be honest, I have a form to fill out for a living will, but I have not filled it out.

It does remind me of my parents once again. Dad basically died of stubbornness. He had some kidney problems that would have been easily solved with medication that he refused to take. He was 78, not 75. He was in cognitive decline. It’s not the choice I would have made, but it was his choice.

Mom was also slowing down. She had 1 COVID shot but never got a booster. When the hospital frantically called and asked if we should put her on a ventilator, we were pretty sure she wouldn’t want that. (We were right, but unsure at the time.) She pulled through and told us she didn’t want a ventilator, so we were happy we picked correctly. She did choose to forego life-prolonging treatment, and died about 2 weeks later.

I miss them both. I doubt they read Ezekiel Emmanuel’s article, but they basically followed his advice. It was hard for me to watch as a son.

I also was asked to give the prayer and pass the sacrament at a nursing home on Sunday. (Surprisingly it was half-hour church! They made an announcement that Sunday School was on Wednesday. Isn’t that Wednesday School? 😉 )

Looking around the room, and considering the doctor visits I had that week, I looked around the room and wondered if I would choose to stay in a place like that if I couldn’t take care of myself. I definitely wouldn’t want to be there. I also know that my parents were having problems taking care of themselves. It makes me understand their decisions better. But I do miss them too.

So, I’ll pose the questions again. I’m feeling quite contemplative today.

Do you agree with Ezekiel Emmanuel with regards to end of life? Would you like to die at age 75? Are these questions that Mormon leaders have weighed in on? Is it a personal decision? Have you put a living will together?

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2 Things I’m Grateful For

  1. Monday was 60 degrees! (The next day it was a rain/snow mix)
  2. Talked to a follower today. That was a lot of fun!
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November is Month of Gratitude

This blog has been vacant for quite some time. Someone challenged me to write a gratitude journal: 3 short things each day I’m grateful for. We’ll see how long this lasts, but here are 3 things today I’m grateful for.

  1. My daughter texted me Saturday and asked to go see a movie with me. That’s never happened before and was pretty cool.
  2. Someone I don’t know asked said he liked my blog and asked if I could help him with a work-related item that was tangentially related to his job.
  3. 2 friends in different states offered help, unsolicited, to do something to really help me. It was a really nice surprise and both happened on the same day (yesterday.)

What are you thankful for in this month of Thanksgiving?

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Unanswerable Mormon History Questions

I’ve been thinking about an alternative Mormon history. What if things had occurred differently. How would the Church be different today? Would there be fewer schisms?

The original apostles were arranged in seniority by age. In 1838, Thomas B. Marsh was president of the Q12. As I’ve learned recently, he went after WW Phelps membership and had him excommunicated in early 1838, but Phelps returned. Following the Mormon-Missouri War of 1838, both Marsh and Phelps produced testimony about Mormon actions of Danite vigilante justice during hostilities. Phelps was excommunicated a second time and came back months later. This time, Marsh left for good. What if the situation was reversed? What if Marsh stayed and Phelps left?

Marsh lived until January 1866. If he had succeeded Joseph, his term of service would have cut into Brigham’s 30 year term of service considerably. (Brigham died in 1877.) Would the saints even have come to Utah under Marsh?

David Patten was second in line after Marsh. What if he hadn’t died during the Battle of Crooked River? Would he have outlived Brigham and Thomas?

What if John Taylor had succumbed to his wounds at Carthage? He obviously wouldn’t have received the 1886 revelation so important to fundamentalists declaring that polygamy was an eternal principle.

For that matter, even if he lived, what if Orson Hyde and Orson Pratt hadn’t been demoted? Hyde survived Brigham by a year, until Nov 1878. Pratt lived until 1881. Taylor lived until 1887. Would succession have changed? The Church functioned without a president for up to 3 years before the first presidency was reorganized during the 19th century. How would Hyde and Pratt have influenced the Church as the top leaders?

What do you think?

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3rd Father’s Day Without Dad

This is my 3rd Father’s Day since my dad passed away. It feels a little weird because I don’t have to worry about getting him a gift. So why celebrate?

Back in January 2014, I wrote about my dad’s hip fracture. One in three elderly patients die within 12 months. Well, my dad made it past the year mark, but he didn’t make it to the 5 year mark. He died in February 2018. He didn’t really need to die, but he didn’t care to take care of his health either. For decades he told us how glad he would be to die. Yeah, it was weird. But he meant it.

My feelings about dad are complicated. I expected to be much more sad, but to be honest, I haven’t really missed him as much as I thought I would. It took me a good year to start to feel better emotionally when I lost my sister (brain tumor) and my brother (car crash.) It was awful to lose them. But dad was mostly ready to die. I was a little angry at him for refusing to stay in the hospital. He had congestive heart failure, and fluid collected in his legs, causing painful sores that got infected. While it was painful, he didn’t want to stay in the hospital to take the IV antibiotics. He punched an orderly (not surprising at all to me–that was dad.) When the doctor asked him if he wanted hospice care, at first he said “No.” Then he decided that might be helpful. He came home on a Friday. He was gone Sunday.

Surprisingly, I didn’t cry much when he died. I was mostly angry with him for being the same stubborn jerk he has been my whole life, but I also knew he was done with life. He grew up in a bad home, joined the Air Force at age 17, then joined the LDS Church, and that was a drastic improvement in his life. So judging where he came from to where he ended up, he was a major success. But growing up with him was also very hard. He was harder on me than my siblings. (They have all admitted that to me.) I always told him that I would miss him, but I haven’t missed him as much as I thought, and I haven’t missed him like I miss my brother and sister. I still think of them almost every day. But dad is more of an afterthought.

Yes, it would be nice if I could call him up for advice on some fix-it job around the house, or ask about a car problem. He could fix stuff much better than me. But whenever anyone helped him, he would yell at them. We never held the light in the right place, or helped the right way, or understood what he was doing. I hated helping him, because he was a jerk with a short temper.

So when I ask my son to help me, I am always surprised at how willing he is to help. Because I hated helping my dad. But my son seems like enjoy helping me. In fact, sometimes I think he can fix stuff better than me. This fix-it stuff must have skipped my generation. But I also know that my son is willing to help me because I don’t yell. I am much more patient than my dad was. Don’t get me wrong. I won’t be candidate for father of the year, but I’m not the worst father either. Still, I don’t have a great relationship with my oldest son. (History repeats itself.)

I wish we had a better relationship. He’s a good person. Like everyone else, I do the best I can. But I also don’t know how to be a good father. I am too impatient, like dad was. But I do feel like I’m more patient and a better father than my dad was.

As I approach this Father’s Day, it is with great ambivalence. I kind of wish we could get rid of the “holiday” though.

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Matriarchy and Patriarchy at Baptism

My brother called me up a few days ago and asked me if I would serve as a witness to his son’s baptism. Of course! I’d be honored. Then I realized why he asked me. Traditionally, it seems that grandpas serve as witnesses at LDS baptisms. But grandpa died a year ago. While I was happy to do the honor, it was also strange to realize that I was taking the role of my dad. Continue Reading »

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Father Forgive them…Not in Original Bible?

My wife gathered the family together to go over the 1st lesson of the new Home Study program earlier this week. (Note my previous post expressing mixed feelings about the 2 hours block cutting out half the lessons.) Anyway, for Christmas this year I got a copy of Thomas Wayment’s New Testament Study Bible for Latter-day Saints, and decided to read all the verses and footnotes out of his Bible.

WOW!

Seriously, if you don’t own this, go out and buy it right now!!! It’s amazing.  Thomas is a New Testament scholar at BYU, and has translated the entire New Testament into modern English, and added lots of AMAZING footnotes.  Seriously, I want this to be the standard for studying the New Testament.  We were reading the verse that should be very familiar to you, but Thomas adds an amazing footnote.  It comes from Luke 23:34.  I’ll quote Thomas’s rendering of the book, which you should clearly recognize, but the footnote is what caught my attention.

Continue Reading »

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Mixed Feelings About 2-hour Block/Pageants

I am probably in the minority.

I think I’m going to miss weekly Sunday School. Having said that, I’m sitting here in the hall skipping Sunday School. So why would I miss it?

I’ve taught gospel doctrine twice. It is one of my favorite callings. It helped kick start my gospel study and forced me to try to make interesting lessons. The manual they give is so poor. Greg Prince is on the board of directors at a Methodist seminary. He handed the LDS Old Testament manual to some people there and they said they had seen some bad manuals, but the LDS manual was the worst. Continue Reading »

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Is the Church Running Scared? (Plus Elizabeth Smart Notes)

The LDS Church has been subject to increasing leaks and protests lately.  MormonLeaks has been publishing internal documents (some mundane, some embarrassing), and some people have been sneaking cameras into church to record Protest-imonies.  Apparently Jeremy Runnells and Sam Young have had excommunication proceedings posted online as well.  Is the LDS Church becoming even more skittish with cameras?

I had a really weird experience happen to me today.  I spent the weekend with my family in Moab.  On my way home from Moab, my wife tells me Elizabeth Smart is speaking at the U of U institute. So I decided to come by myself because she is tired of driving. She sends me the Facebook post telling me it is open to the public. Continue Reading »

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Please Give Me Advice for a Calling I Don’t Want

After a few pleasantries, including how busy my life is, here’s the gist of a conversation with a counselor in the bishopric.

Counselor:  Brother, the reason why you are here is that we have prayed on our knees, and the bishop feels inspired to call you to be the building coordinator.  Now you don’t have to clean the building yourself.  You just need to set up a program so that the building gets cleaned every Saturday.  What do you think?

Me:  Honestly?  I think this is a crap calling.  I’ll do it, but I’m not excited one bit about it.  I hate it when people assign me to do the cleaning without asking me if I’m available.  I often work weekends, and my wife will help clean the buiding, because she has a supremely guilty conscience.

Counselor:  Well, that schedule is just a suggestion.  You can always ask to trade with someone else.

Me:  It’s a bad system.  I get it that you don’t want to have the same people doing it over and over, and that everyone should have the opportunity, but I hate being assigned.

Counselor:  Do you have a better suggestion?

Me:  Hire a janitor.  The Church makes $50 billion/year.  Hiring a janitor would be supremely easy and the Church can easily afford it. Continue Reading »